Contact Us

Avery’s Bucket List Blog Raises Awareness of Newborn’s Heart-Wrenching Illness

Spinal Muscular Atrophy - Avery's Bucket List Blog
Avery's Bucket List Blog

“Imagine you’ve been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do?”

The parents of 5-month-old Avery Lynn Canahuati, who’s suffering from spinal muscular atrophy, had to ask themselves this same question. Their answer? Avery’s Bucket List Blog.

After Avery Lynn was diagnosed with this illness, the doctors said she would only live to be about 23 months. According to the National Library of Medicine, “Infants with SMA type I are born with very little muscle tone, weak muscles, and feeding and breathing problems.”

Laura and Mike Canahuati, in response to this devastating situation, acted in a truly admirable and heartwarming way. They created an online photo journal that not only acts as their child’s bucket list, but also seeks to raise awareness of spinal muscular atrophy and the other infants who are suffering with it.

Check Out Pics of Avery Lynn with the Texas Sugar Land Skeeters Baseball Team

Avery's Bucket List Blog
Avery's Bucket List Blog
Avery's Bucket List Blog - Sugar Land Skeeters
Avery's Bucket List Blog

The only thing the Canahuati family is asking of you is to share their daughter’s story to as many people as you can, in the hopes that one day routine SMA testing will be offered and future sufferers will be saved.

Learn more about Avery Lynn and spinal muscular atrophy at her Bucket List Blog, and follow her on Twitter and Facebook.

[via The Huffington Post]

Recommended for You

Around the Web

Best of TheFW

Leave a Comment

It appears that you already have an account created within our VIP network of sites on . To keep your personal information safe, we need to verify that it's really you. To activate your account, please confirm your password. When you have confirmed your password, you will be able to log in through Facebook on both sites.

Forgot your password?

It appears that you already have an account on this site associated with . To connect your existing account just click on the account activation button below. You will maintain your existing VIP profile. After you do this, you will be able to always log in to using your original account information.

Please fill out the information below to help us provide you a better experience.

(Forgot your password?)

Not a member? Sign up here

Sign up for TheFW quickly by connecting your Facebook account. It's just as secure and no password to remember!